Your participation in research is an invaluable service to the the broader autism community. We are conducting studies appropriate for individuals of all ages, from infants through adults, including individuals with and without autism. Here are some common questions that we receive about participating in research at the Duke Center for Autism and Brain Development:
What does it mean to participate in research?
Participating in a research study can mean a lot of different things--our studies are varied. For most studies, it involves you and/or your children coming to one of our family-friendly research labs and completing various cognitive and behavioral assessments. Assessments can include activities such as watching short videos on an iPad, eye-tracking tests, EEG tests, and in some cases medical procedures like blood tests. Be assured that before you enroll for any study, research staff will inform you of all the study-specific protocol and requirements. All research at Duke is completely voluntary and you always have the right to withdraw at any point during a study.
Will I be compensated for my time?
Most of our research studies do include compensation for your time and efforts. Travel expenses and parking are also typically covered. Compensation varies by study and is usually commensurate with the amount of time the study requires.
Are there benefits associated with participating in research?
Most studies offer a gold standard diagnostic assessment at no cost that you to take with you when you go. Many studies also offer other cognitive and behavioral assessment reports that you can take with you to your care providers. In addition, we offer referral information to participants, helping to connect them with services at Duke or in the community.
If I/my children do not have autism, do you still need us to participate?
Yes! Our studies involve a diverse range of participants, including people with and without autism. Anyone who is interested in helping further our research efforts can partner with us.
How do I get started?
The best way to get involved is to sign up for our research registry. If you are in our registry, you will automatically receive our newsletter and be notified as soon as we begin recruiting for a study for which you or your children may be eligible. To request an enrollment phone call, please use our webform.
You can also see our current studies and contact the study coordinator for an individual study in which you are interested.